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angelman syndrome foundation: Angelman Syndrome National Walk-a-thon May 15th, 2010 - Cooper River Park, Pennsauken - 05/06/10 10:35 AM
Join us for the 2010 National Angelman Syndrome Awareness Walk on May 15th, 2010!
Last year our area raised over $80,000 for research and awareness of Angelman Syndrome and we need your help to do it again!
You can still come and walk with us at Cooper River Park in Pennsauken, NJ near the Playground and Dog Park - just follow the signs.
Registration opens at 8:00am and the walk starts at 9:15am. We will have plenty of food, musica nd fun!
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angelman syndrome foundation: Angelman Syndrome Walk at Cooper River Park, Camden County, NJ May 15, 2010 - 02/25/10 02:51 PM
This is my personal Fundraising page! You can have your own!
Registration opens today for the 2010 National Walk to Support Research and Awareness for Angelman Syndrome!
What is Angelman Syndrome?
Angelman Syndrome (AS) is a neuro-genetic disorder that occurs in 1 in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism. Characteristics of AS include; developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman Syndrome will require life-long care. ~ via www.angelman.org
When?
May 15, 2010 Saturday
Registration starts at 8am and the walk around 9am
Where?
Cooper River Park, 5300 North … (5 comments)
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angelman syndrome foundation: February 28, 2010 is Rare Disease Day - Update! - 02/17/10 01:13 PM
I share this information with you today because my son suffers from one of these Rare Diseases called Angelman Syndorme.
He is a beautiful loving little boy who suffers from multiple delays and seizure disorder.
I want to bring awareness to all disorders that may not receive the funding they need to perform much needed research and support for families!
UPDATE - Visit the following link for at www.rarediseaseday.org for more inspiring blogs!
(Since I couldn't have said it better myself here is an excerpt directly from the website)
Why is Rare Disease Day important?
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angelman syndrome foundation: Having Children can Effect your Social Status. - 09/13/09 10:05 PM
Many of you know the effect that children can have on your lives. Soooo many emotions let loose by the fact that a little part of yourself will carry on for the world to see.
I can still remember the day my husband and I decided to have kids, we were sitting in our family room (ironic, don't you think!) watching TV wondering what to do on that Saturday afternoon. We both looked at each other and thought, we are bored, let's have a kid!
Needless to say after a few months of disappointment we finally had achieved our goal and … (10 comments)
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angelman syndrome foundation: What a day! - 05/18/09 03:14 PM
What a day! The outpouring of support from those and forthose who are affected by Angelman Syndrome was overwhelming at this year's 2009 Angelman Syndrome National Walk-a-thon that took place in 24 locations across America this past Saturday May 16th, 2009.
Before I had even stepped out my door at 5:45am the morning of the walk we had already raised over $55,000 and had preregistered over 370 walkers for the Philadelphia area walk-a-thon which took place at Cooper River Park in Pennsauken, NJ. We were over 50% of the way to our goal for fundraising and had exceed our attendance by … (4 comments)
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angelman syndrome foundation: Angelman Syndrome National Walk-a-thon May 16th, 2009 - Cooper River Park, Pennsauken - 05/12/09 11:57 AM
I am excited to announce that we have over 375 pre-regiestered walkers for this years walk!!!!!
And we expect many more to come the day of and register. It's not too late to join us for a great day full of sunshine and fun.
Registration starts at 8am and the walk starts around 9am.
You only need to sign a waiver to participate, we will be walking around the beautiful Cooper River path with gorgeous views of the marina and wildlife.
Last year our location raised over $100,000 and we hope to meet that or exceed it this year.
Nationally the … (2 comments)
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angelman syndrome foundation: Angelman Syndrome Foundation Walk-A-Thon in Philadelphia, May 16th, 2009 - 04/08/09 12:06 PM
Hello Everyone,
My son Nicholas has a rare disorder called Angelman Syndrome, for th epast few years I have been the chair person for the Philadelphia location. Please take afew moments to look over the information below and learn more about this syndrome.
Feel free to join us may 16th, 2008 at Cooper River Park, Pennsauken NJ - Registration starts at 8am!
The Angelman Syndrome Foundation is excited to announce our National Walk-A-ThonOnline Registration and Walk Personal Fundraising Pages are now open at www.angelman.org. Visit www.angelman.org/walk-a-thon to learn more.
Together we can raise over $1 million dollars to … (2 comments)
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Bridget Cella, e-Pro Realtor
Sewell,
NJ
More about me…
Re/Max Connection
Address: 5701 Rt. 42, Turnersville, NJ, 08012
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Cell Phone: (609) 352-1667
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