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Living with a Baby Who is Going to Die at Birth
My first real parenting decision was made on June 26, 2015.  It was simple, but not easy, particularly since it was a life or death decision.  My newlywed wife Amira was 12 weeks into her pregnancy with our first child.  We were told that day by our doctor that our unborn child had a condition which was “not compatible with life.”  Our baby did not develop a top of the skull.  There would be nothing to contain and protect the cognitive part of the brain, and therefore the brain could not develop.   Anencephaly, the doctor called it.  A terminal prenatal diagnosis.  A birth defect.  A death sentence. 
And a choice.  Amira and I decided we would carry our baby to term, instead of terminating.  We would give our baby a chance to be born, even if death would happen the same day.  Our baby had a heartbeat and was moving around in Amira’s womb.  Being Christian, and pro-life, made the choice to carry to term simple.  But our choice is not easy.
The Paradox of Modern Medicine
The paradox of modern medicine allows us to know more about our baby, yet because we know so much we can now see death coming in the ... more

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