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A World Without Sight

By
Real Estate Agent with RE/MAX Alliance - Louisville REALTOR-Luxury Homes

Our Story

I have no comprehension of what it would be like to go through life without sight.  I have excellent vision and have never even had to wear glasses or contacts.  My children on the other hand are a different story.  They were born 15 weeks early and developed ROP (Retinopathy of Prematurity).  In an attempt to prevent complete blindness, doctor's performed laser surgery to stop the improper growth of blood vessels.   

Despite later having Lens Replacement surgery (I didn't know you could do that on a 5-yr old either), my son has 20/80 vision in one-eye and 20/800 in the other and his peripheral vision is limited to about 10%.  Even if he keeps his sight (not guaranteed), he will mostly likely never play sports, drive a car, etc.  My daughter has similar problems, but not to this extreme.  As a parent, this is frustrating, saddening, and a host of other -ings including frightening. 

VIPS

VIPS (Visually Impaired Preschool Services)

We are lucky to live in Louisville and to have found the Visually Impared Preschool Services(VIPS) while our kids were still young.  First of all, it is so much more than a pre-school.  The staff and therapists at VIPS help children from birth.  The conduct assessments, do in-home interventions, and offer Play Groups for those under 3.  Second, they are a resource that is unparalleled when it comes to advocating for blind or low-vision children. 

The Mission of Visually Impaired Preschool Services, Inc. (VIPS) is to offer appropriate services to infants, toddlers, and preschoolers who are visually impaired or blind and to their families; to maximize each child's development potential through direct services, advocacy, and community education.

It is easy to read this statement and skip over the "and to their families" portion.  However, the help and support they offer to parents is incredible.  VIPS has taught us so much about our children that it is not possible to document it all here.  Most importantly, they have given us the knowledge and tools to continue to advocate for them and make sure they have everything they need to succeed in school and in life.  Perhaps the greatest gift VIPS has given me is hope.  With their help, I have no doubt my children can overcome the obstacles they will face. 

Contact for Help

So, if you have a child who has vision loss, give VIPS a call at 502.636.3207.  You can also check out their website (www.VIPS.org).

 

Donate

For those of you who don't need their services, but would like to help, you can donate here.  Of course, please don't feel pressured.  The blind children will understand if you have better things to spend money on:)

VIPS Graduation

 

* * * * *

Erik Hitzelberger is a licensed REALTOR with RE/MAX Alliance in Louisville. If you need a Louisville Real Estate agent please email me or call 502.921.3989.

I specialize in the following areas of the Metro Louisville Area: Prospect, Middletown, Jeffersontown (J-Town), Fern Creek, Okolona, Shepherdsville, Mt Washington, Hillview, Brooks and Pewee Valley.  Click the following links to learn more about Louisville and Bullitt County Real Estateor to Search for Louisville Homes 

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Comments(9)

Paul Slaybaugh
Homesmart - Scottsdale, AZ
Scottsdale, AZ Real Estate

I can't even begin to imagine, Erik.  The only phrase that seems appropriate is tragically unfair.  Once you become a parent, all you really want is for your kids to be happy and healthy.  Every other concern is a distant second.  I am relieved to know that there is such a wonderful school available for your kids and other families with similar afflictions.  Best wishes in your fundraising efforts.  Can't think of a much better cause.

Jul 17, 2009 04:44 PM
Kristin Moran
Owner - RE/MAX Access - KristinMoran@Remax.net - San Antonio, TX
San Antonio,TX - Real Estate - 210-313-7397

Sounds like a marvelous school Erik - I am glad they give you hope.  I have seen pics of your kids on f/b - they are adorable! 

Jul 18, 2009 01:41 AM
John Cannata
214-728-0449 http://TexasLoanGuy.com - Frisco, TX
Texas Home Mortgage - Purchase or Refinance

Erik, I know this is a personal story in part, and also educational to those that are not familiar with this program. With that being said, I would like to reblog this post to spread the word and hopefully get a few more people to donate. If you do not wish for me to reblog, please let me know and I'll delete it from my blog.

Its stories like this that remind me how stupid it is to be concerned with Bells Palsy.

Jul 18, 2009 09:23 AM
Melina Tomson
Tomson Burnham, llc Licensed in the State of Oregon - Salem, OR
Principal Broker/Owner, M.S.

Erik you know I have a special needs kiddo and you always have this chronic worry about making sure they have everything in place to get to be wonderful and happy adults.  As a photography buff, I can't imagine not being able to see, but I see many people around town here with their white canes and they are doing just fine.  The fact that they are out walking, grocery shopping and doing just fine.  Many with their sight dogs are just wonderful folks.  (There are several regulars at the grocery store I go to). 

This always reminds me when my worry gets excessive that if we just stay focused on the long term, we'll get where we need to go.

Jul 19, 2009 03:42 AM
Erik Hitzelberger
RE/MAX Alliance - Louisville REALTOR-Luxury Homes - Louisville, KY
Louisville - Middletown Real Estate

Paul - Despite some of their physical limitations, my kids are very happy.  For that, I am truly thankful.  As for the rest, everything is relative.  It's easy to focus on the negative, but I've seen a lot of families who have it a lot worse.  My focus is trying to make sure that my kids have every opportunity to be successful, however they choose to define it.  Vips certainly help me accomplish that goal.

Kristin - Thanks! In my not so unbiased opinion, I completely agree.  BTW, that's them in the middle above.

John- Actually, I'd like to thank you for the reblog.  My reasoning for sharing this story was to raise awareness.  Regarding Bells Palsy, I don't think it is stupid at all.  We all have challenges to face and burdens to bear.  Just because one is different than the other doesn't mean it affects your life any less.

Melina - You are correct.  Focusing on the long-term is critical.  Eventhough, they are 6, my wife and I have spent a lot of time trying to figure out how to best prepare our kids for kids for getting out of school and having lives of their own.  Sending them VIPS for another year instead of Kindergarten was a big decision, but I definitely think it was the right thing to do.  Now, if I can just get the regular school system to think beyond 1-year at a time.

 

Jul 19, 2009 06:59 AM
John Cannata
214-728-0449 http://TexasLoanGuy.com - Frisco, TX
Texas Home Mortgage - Purchase or Refinance

Well then i am glad I reblogged it. Thanks Erik!

Jul 19, 2009 07:14 AM
Melina Tomson
Tomson Burnham, llc Licensed in the State of Oregon - Salem, OR
Principal Broker/Owner, M.S.

Erik I started my daughter in kindergarten when she was 6 instead of 5.  I have yet to hear a parent that regretted that decision.  Many parents around 3rd grade realize that doing that would have made a huge difference for their kids.

In fact the preschool my kids went to tells many parents of non-special needs kis to start their kids in kinder when they are 6.  Some kids just need more time, and having them start when they are 6 instead of 5 can be the difference between loving school and positive self esteem and hating school.

Jul 19, 2009 11:48 AM
Erik Hitzelberger
RE/MAX Alliance - Louisville REALTOR-Luxury Homes - Louisville, KY
Louisville - Middletown Real Estate

Melina - We talked to several people and I also never heard anyone say they regretted the decision. My daughter has made tremendous strides over the past year and should have no problem.  My son is still going to need some assistance, but has also made a lot of progress.  The 3rd grade issue is what I was alluding to above.  The school system tried to tell us they were ready for K last year.  We figured they might be okay, but at some point they would start to get behind.  By some point (2nd-3rd grade?) it would have been an issue. 

Jul 19, 2009 04:18 PM
Wendy Rulnick
Rulnick Realty, Inc. - Destin, FL
"It's Wendy... It's Sold!"

Erik - I never knew about ROP. Thank you for enlightening. We can tell you are a great Dad.

Jul 22, 2009 12:11 PM