Today I was called on to help a family who desperately needs one of those Extreme Home Makeovers you see on TV.  In fact, they have already been nominated for that show, but it seems they are done for the season and since they've already worked with a family within 100 miles of here, they were turned down.  These poor folks must be feeling like the Biblical Job by now.  They have three children, two girls and a boy.  Both the girls have Spinal Muscular Atrophy, a progressive wasting disease of the muscles.  The older one can move her head and use one hand a bit, but that's ALL.  The younger girl can crawl around on her elbows.  They are in an experimental drug trial in Utah that has helped stabilize the progression of the disease for now, but the prognosis is not good.  The home health equipment needed to care for these girls is monstrously expensive, but beyond that, its really BIG.  The average sized bedroom just doesn't get it.  The family currently lives in a bi-level home, which makes it really hard for them, since they have to carry the older girl everywhere within the house.  The bedrooms just aren't big enough and the hallways won't accomodate her motorized wheelchair.

To top it all off, their son was recently diagnosed with Krohn's disease!  Poor little guy has to go to hospital frequently to be medicated intravenously because the oral medication wasn't working.

The list of things these folks need is a mile long, but first and foremost they need a house they can get around in!  I'm looking for a ranch style home with extra wide doorways and big bedrooms, with either a pool for therapy or room to install one.  We have a carpenter willing to remodel to make an existing home accessible, but chances are that building from scratch will be the best way to go.  Has anyone out there had any experience with doing their own local extreme makeover?  I'd love to be able to bring this family into a home that meets their needs!  What are my chances of getting charity funds for something like this?

 

4 Comments on Extreme Home Makeover

JUN
13
2007
I would suggest approaching a larger church and seeing if their congregation could help as part of a mission project.
1:11pm • #1

Nola, thanks for relating the story of your family that needs a makeover. However, it might be too early to give up on ABC Extreme Home Makeover. One of my design clients, Linda Jefferson in Lawton, OK (GoArmyHomes.com) and her staff put together a huge petition drive, collecting thousands of letters asking ABC to come to Lawton. The petition drive was said to have been instrumental in ABC's decision to do another military family's home even though they had previously said that they didn't want to do another military story. You might also see if Habitat for Humanity might help you.

One realization that I had from my peripheral, long-distance involvement with the Lawton, OK Extreme Makeover was that all ABC brought to the table was publicity, which became the driving force influencing other people and companies to donate resources needed for the re-build. If you can somehow generate a similar level of publicity, you might be able to do something similar. However I would think that an organization like Habitat might be able to either help you or refer you to people who can help.

I wish you the best of luck!

Suzanne

Suzanne Hathcock Stephens
Point2Agent Design Partner
http://www.SuzStephens.com

1:17pm • #2
I don't know if this will help at all, but I just posted a link to this blog entry at Shak & Jill.  It's a difficult thing to be a part of - on one hand you feel helpless and want to do everything, but on the other you gradually come to realize that you can't.  Good luck.
1:47pm • #3
JUL
29
2007

There is a soldier in San Antonio, Texas who lost both legs and one arm while serving in Iraq.  I don't know his name at this time, but I will find out what it is and let you know.  He is married and has 2 small children.  I would like to see him get a new handicap accessable home, and maybe a motorized wheel chair for more independencea.  He lost his limbs defending our freedom.  If anyone deserves special treatment it is him and his family.  When I get his name, I will e-mail it to you.  Please consider him and his family for an extreme home make over.

Thank you,

Gwen Abbott

Gwen Abbot
9:53pm • #4

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Nola Comingore

West Chester, OH

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Comey & Shepherd Realtors

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