This one is long.  It isn't pretty.  I don't have any photos on here yet, but I hope you read it anyway. 

Gabriel was born January 2, 2001.  He has two little sisters, Adria and Alaina, born just a few years later.  Our entire office lights up when they come to visit their daddy.  Everybody loves them.  It gets a little loud, but then again, they are little kids.  You cannot help but smile when one of those little faces shows up in your office.

Gabriel is a ray of sunshine.  He's a friendly, outgoing child.  Shawn, his father, works in my office.  His advertising niche has always been this great little cartoon "The Adventures of Gabriel".  Even if you weren't in the market, you couldn't help but read to see what the little tyke was up to each week.

Several months ago, Gabriel started getting sick.  He would get really bad headaches, get tired easily, and sometimes get sick to his stomach.  Then he would start having seizures.  Each time, things got worse than the time before.

Desperately, his parents sought medical help.  The problem was, there was no diagnosis.  Nobody knew what was wrong with this little boy.  We live in Southeast Alaska.  We've got some pretty good medical care here, but nobody here could figure this one out.  They spent a lot of money travelling from one specialist to the next, all over the country, hoping for a diagnosis. 

It's easier to fight the monster when it has a name.  But this monster eluded the experts for many months of expensive trips to specialists all over the country.  Finally, just a few days ago, they got a name.  "Mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes". 

Now that they know the name, we find there really is no treatment.  This family has always been generous with their time and money.  They organized a number of fundraisers for a friend when her child was ill.  Shawn is the President of the Alaska Association of REALTORS and gives hundreds of hours of his time for worthy causes.

Now, they are in a really tough position.  They really need to spend time with their children, but they also need to pay the bills.  Lots of bills - medical, travel, and of course, house payments and basics like utilities and food.  Their father needs to take some serious time off work and be with the children.

So, my friends, I'm looking for ideas for a serious fund raiser.  My brain is tired.  I have mastered the $3,000 fundraiser and I've pulled off a few $5000 events in my life but this time I'm over my head.  I haven't been contributing much around here the last month or so because of this and a few other life events, but here I am, asking for your advice.  My friend needs help and I just cannot come up with any really good ideas.

 
Post is included in group: Alaska - Real Estate In The Last Frontier

9 Comments on Big words, small child, broken hearts and a plea for help

APR
08
2008
5 Featured Posts
This might sound stupid, but contact Extreme Makeover Home Edition.  They always seem to help address the medical needs of the people, as well as give them a new home. 
12:08am • #1
227,815 Points 1 Featured Post Outside Blog
Maybe some big auction where you get a bunch of donations with some bigger tag items.
12:15am • #2
4 Featured Posts Localism Sponsor

Pam - Perhaps I didn't make it clear.  There is no treatment or cure.  It's only a matter of time.

Chuck - Are you thinking art?  Furniture?  I'm listening!

12:17am • #3
229,517 Points 22 Featured Posts Localism Sponsor Outside Blog

Debe - Stories like this just break my heart.  I can't imagine what the parents are going through.  We are NOT supposed to go before our children.

Perhaps you could put together a auction - get local businesses to donate items to be auctioned off.  Banks, title companies, local utilities, Alaska Airlines has always been willing to pitch in, the cruise lines, hotels, etc.  Organize the auction around a spaghetti (or something inexpensive) dinner - heck you might even get some local caterers or restaurants to donate the food.  Many moons ago when I was with Tesoro I chaired a couple of events for local causes... it's a lot of work, but it will be worth it.  Call or email me if you want to brainstorm.

Edit - Art, fishing charter gift certificates, hotel get-away-packages, restaurant gift certificates, airline tickets, jewelery, lawn care, spa packages, car details, cell phone/PDA - airtime... that sort of stuff. Anything/everything

12:30am • #4
240,060 Points 11 Featured Posts Localism Sponsor Outside Blog Hit Router
I am so sorry. I would follow Chuck's and Jesse's lead. I have raised lots of money for school projects in the past with auctions - a spaghetti dinner -and then a silent auction and a live auction. Have music there and a real carnival atmosphere to keep every one entertained.
12:35am • #5
12 Featured Posts

Debbie - Its such a sad story to hear and I hope you have much success with your fund raising, such a kind thing to do.

Recently we had the Shamrock Marathon raised thousands of dollars for this event, running for a cause can be one idea.  Also we do the Polar Plunge here in virginia beach, since we live by the ocean, its a creative and fun way where people rush to the ocean in this cold weather stay for 10 seconds and come out.

Also to help promote online awareness why not take advantage of your online social networks.  You can create a fund raiser paypal button link on your blogs and people who read your post can pledge right away online through the link.

Theres always Make a Wish Foundation too, they might provide the ultimate dream family time they are hoping for as well. 

Hopefully this helps and my prayers are with Gabriel.

 

 

1:27am • #6
APR
10
2008
One thing that has worked for an association was the selling of raffle tickets for a laptop.  Buy a laptop, then sell tickets.  Limit the # of tickets, but charge a higher price.  Give the proceeds to the family. 
8:33am • #7
157,079 Points 1 Featured Post Outside Blog

Wow! I wish you well on that one. It sounds like the family really could use your help in this. I wish that I had ideas, but haven't done much with fundraising like that. Yikes! I like the ideas that I'm seeing on here though. Great ideas...

4:29pm • #8
157,079 Points 1 Featured Post Outside Blog

Wow! I wish you well on that one. It sounds like the family really could use your help in this. I wish that I had ideas, but haven't done much with fundraising like that. Yikes! I like the ideas that I'm seeing on here though. Great ideas...

4:30pm • #9

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Debbie White

Juneau, AK

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Prudential Southeast Alaska Real Estate

Address: 9110 Glacier Highway, Juneau, AK, 99801

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