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A Day in the Life of Autism - My story

By
Real Estate Agent with Realty World Alliance

My son, Emerson, is autistic.

Every now and then I get riled up about the news about Autism and what some folks think about it.  Sometimes they are persuasive enough that I wonder, is discipline what my child is missing?

This is a farly personal post, but I wanted to share what autism is like in our life. 

Emerson was diagnosed as moderately autistic, with hyper-activity and OCD. He's verbal and fairly well functioning, but has a lot of tics and is easily over-stimulated. 

Here's a few examples of how autism affects our life:

  • When driving in the car, if the baby starts crying, within 30 seconds of that Emerson starts tic'ing.  He clicks his teeth, pulls his hair, and hums "his" song loudly.  These are all signs of him being overwhelmed and overstimulated.  If this happens, we have just a few minutes to pull over and get the baby calmed down, before he starts really tricking out (head slamming against the seats, biting himself, etc).  Imagine this on a road trip.  So no trips for us.  The baby cries anytime we drive at night, so we can't go anywhere at night with the two of them together.
  • This same thing happens to most any instance with noise stimulation.  So if we pull up beside the lovely young teens blaring their music, we have the same problem as above.  Makes for a long red light and a huge delay when we get where we were going as we have to calm him down.
  • At school, every kid gets to sit on the first letter of their name on the alphabet rug.  He can't.  His letter is in front of the air conditioning vent and the feel of the air blowing against him "hurts."
  • He can/will only eat beige foods.  We have gotten that expanded to the browns/mauves and pale yellows though.  When all the kids at school finished their project graphing candies, they got to eat them.  He ate nothing.  We haven't yet figured out whether we should make him "special" by having brownish foods for him alone every night while we eat something else.  So far, we all eat brown food. Yay. 
  • to feel secure, he collects objects and stashes them in "his" corner.  within minutes, he willl have a 3 foot tall pile of stuff collected and lined up in patterns underneath the dining room table and he panics when someone comes near it. 

Those are just a few ways that it affects us, day to day.  I don't want to debate whether it is or isn't medical, neurological, discipline, whatever.  I just wanted to share some of the life of my brilliantly odd son.

Emerson, 5, is Autistic

 

To share your autism story, email me at sheree@ksgreathomes.com

~sheree~

Posted by

Carey Pott
January Financial - Foothill Ranch, CA

That definitely sounds challenging. I'm amazed, given what you've shared, that people could think that Emerson's behavior could be "fixed" with the appropriate discipline. Thanks for sharing a little of your life with us, and for sharing your beautiful son with us!

Aug 19, 2008 05:42 AM
Jim & Maria Hart
Brand Name Real Estate - Charleston, SC
Charleston, SC Real Estate

Hey, Sheree. I think that he is a handsome little guy and I wish you all the best. I know that I easily get annoyed when a car drives up and they are playing their music to loud, so I cant imagine what you go through. Thanks for sharing your life with us, Jim

Aug 19, 2008 05:50 AM
Joel Weihe
Realty World Alliance - Wichita, KS
Helping you to use your VA home loan benefits

January - Thanks.  It is challenging, but he is such a sweet and unique kid.  Some of his tics include parroting and sometimes it is just a riot to hear him parrot this stuff. I think people just see the fits of autism and not the nuances.  Yes he has fits, but those aren't as hard to deal with as the stuff that we can't control - other people's behaviours that affect him!

Jim - Thanks, he is a cutie! It drives me nuts when cars do that too, but not as bad as now that I can see how it affects my son.  Breaks my hard to be stopped at a long light and watch him nearly pull his hair out or start slamming his head on the seat because he can't handle it, even with the windows up. 

Aug 19, 2008 06:09 AM
Greg Nino
RE/MAX Compass - Houston, TX
Houston, Texas

Hi Sheree,

My wife was ultra paranoid about certain "shots" in fear that this could happen to our son.

What do you think?

Aug 19, 2008 07:01 AM
Joel Weihe
Realty World Alliance - Wichita, KS
Helping you to use your VA home loan benefits

Greg - I don't have enough info.  I do know that all 3 of my children have had the exact same shots in the same timeframe and only 1 has been diagnosed.  All my friends kids had the same shots and haven't been diagnosed.  But there are so many versions of autism, who is to say which causes which type and what aggravates which ones and makes them come out?

Aug 19, 2008 08:40 AM
Bryant Tutas
Tutas Towne Realty, Inc and Garden Views Realty, LLC - Winter Garden, FL
Selling Florida one home at a time

Sheree, I did not know any of this stuff about Autism. THis post opened my eyes and I will now do some research. Your son is a real cutie!!!

Aug 19, 2008 10:46 AM
Don Fabrizio-Garcia
Fab Real Estate - Danbury, CT
Owner/Broker/Trainer - Fab Real Estate

Sheree - I have three "special" children.  We may get stressed out, we may get tired, and we may sometimes just want to yell and scream and cry, but we love them and kiss them and enjoy them every day.

Just don't forget to kiss your kids! And, as an old friend always tells me, "Don't forget to breath."

Aug 19, 2008 12:04 PM
Joel Weihe
Realty World Alliance - Wichita, KS
Helping you to use your VA home loan benefits

BB - Thanks! He is cute!  Everyone just sees the fits but there is so much more.  It's a sensory disease.  He can't filter out or tune out things like we can.  So that background noise is blaring with everything else in his life and his brain can't handle it.  Same thing with tastes, smells, some kids have touch problems, their brains cant process the sensory stimuli.

Don - I swore up and down that I would never parent a special needs child.  I didn't think i had it in me to do all I could do.  I still don't think I do.  It's a full time job trying to keep up with the news, therapies, social stories, picture schedules, etc, and i don't do it well.  I hate the conflict - work to feed my family, or spend hours every day nourishing one child's mind? 

Aug 20, 2008 04:00 AM
Don Fabrizio-Garcia
Fab Real Estate - Danbury, CT
Owner/Broker/Trainer - Fab Real Estate

Sheree - None of us thought we could do this.  None of us planned on this.  I adopted 3 kids in 15 months.  That was never planned.  But we do it and we get through it.

Talk to parents of kids who do not have special needs.  They have their problems, too, whether they be behavioral or medical or something else.  That's what always made me get through each day.

I do consider myself lucky.  My eldest is doing great.  A lot of his past seems like an old nightmare that never happened.  My youngest two are doing as best as they can, and we have great support in the schools, which counts for a lot.  We get strange comments "Why is he still having tantrums?"  "Why is he still in diapers?"  "Why isn't he talking yet?"  Let that be the worst I have to deal with.

We don't have the same situation as you, though it does look like the younger two may end up diagnosed with Autism.  It scared me at first. But that diagnosis won't change the way we love them.  In fact, it may help with the services the schools will provide.

Work is a must.  You can work and parent.  You can work and care for your son.  Some days it won't seem possible...but we've all gotten through those days in the past and we'll get through them in the future!

Aug 20, 2008 04:22 AM
Anonymous
Bonnie Sayers

I am a single parent to two boys on the spectrum and this morning we ventured to the laundromat and then walgreens.  It was a might mare and I put it off for 11 days, but had to do it. My son is the loudest thing on the planet and runs all over the place.  He is 12 and nonverbal but loud.

Aug 20, 2008 08:06 AM
#10
Joel Weihe
Realty World Alliance - Wichita, KS
Helping you to use your VA home loan benefits

Don - I hope you live in a state wth better autism resources.  There is only 1-2 agencies here and they serve all special needs and are generally always booked up.  I've been on a waiting list for a pediatric development appointment for 1 year already, 6 more months to go.  

Bonnie - Thanks for the twitter follow too!  It seems like sometimes when it's noisy, he has to make his own noise too to cope, I'm not sure if it's because his voice would be louder and drown out the other or what the deal is.  He'd have a cow in a laundromat, I think.  My middle child just turned 3, and I'm watching him close.  It's been crazy to see the difference between my Spectrum boy and my mainstream boy.  Emerson never did half the things Jamie has been doing, and in some instances, still can't do those things.

Aug 20, 2008 08:20 AM
Don Fabrizio-Garcia
Fab Real Estate - Danbury, CT
Owner/Broker/Trainer - Fab Real Estate

Sheree - I think resources can be terrible everywhere.  We've been fighting for two years to get a neurological examination for our middle son.  We still don't have an appointment, but I think we're close...  Once we get that set, then we get to start all over again for our youngest.  It's always a fight.

As I said before, our sons have not been diagnosed with autism, though that is what it looks like may be the case.  It has been interesting to read about your son's problems with noise - I never knew that could be a symptom of autism, and it is a problem with my two youngest sons.  For the youngest, he can be no where near a lawn mower.  They have to take him out of the classroom - or off of the playground - whenever the lawns are being mowed at his school.  I can't mow my lawn when he's home.

Aug 20, 2008 01:45 PM
Brady Barnard
Realty World Alliance - Wichita, KS

I can only imagine how trying parenting a child with autism is.  Wichita is lacking in autism awareness, as well as autism specialists.  My older sister is getting her masters in speach pathology and is very interested in children with autism spectrum disorders.  You are a strong woman.  God will never give you more than you can handle. 

Aug 28, 2008 08:19 AM
Joel Weihe
Realty World Alliance - Wichita, KS
Helping you to use your VA home loan benefits

Brady - Thanks for the support!  Wichita's not a big fan of special needs.  There's Rainbows and Heartspring ($$$$$$$$) and that's it. 

your sis makes the 3rd going into speech and interested in autism that I have met in the last 3 months, so I am hoping that if some of these folks stay local, maybe we can get a better array of services for these children.

Aug 28, 2008 12:22 PM