rare disease day: February 28, 2010 is Rare Disease Day - Update! - 02/17/10 05:13 AM

I share this information with you today because my son suffers from one of these Rare Diseases called Angelman Syndorme. 
He is a beautiful loving little boy who suffers from multiple delays and seizure disorder. 
I want to bring awareness to all disorders that may not receive the funding they need to perform much needed research and support for families!


UPDATE - Visit the following link for at www.rarediseaseday.org for more inspiring blogs!

 (Since I couldn't have said it better myself here is an excerpt directly from the website)  
Why is Rare Disease Day important?
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