Some of you may remember reading my post about my grandson, Lucas, several years ago. He was born with a rare form of Muscular Dystrophy called Congenital Myotonic Dystrophy. The doctors told us he would be "lucky" if he made it to his first birthday. Lucas spent the first six months of his life in NICU at Children's Hospital in Dallas. During his NICU stay, Lucas had a feeding tube and a trach put in. We told that most likely he would always have to have these things. They predicted that he would never (20 comments)