Benign Essential Blepharospasm (BEB) Week

Real Estate Sales Representative with RE/MAX All-Stars Realty Inc. Brokerage

Benign Essential Blepharospasm (BEB) Week

May 15th - 21st 2011Special Prescription Glasses for blepharospasm

"My Grandma Wears Funky Glasses  and I helped pick them out." ..... Joseph


Hopefully this post will help raise awareness of this disorder which in turn will help in raising funds for research into the cause to help find a cure.

Currently the most common form of treatment is periodic injections of botulinum toxin.

This movement disorder of the eyelids affects an estimated 5 out of every 100000 people, mostly women, with the average age of onset being 56. 

"The term blepharospasm ['blef-a-ro-spaz-m] can be applied to a forced, sustained, and involuntary closure of the eyelids. It stems from a number of causes, beginning with dry eyes, and, may progress to a state where the person is "legally blind". The blepharospasm referred to here is officially called Benign Essential Blepharospasm (BEB). "Benign" indicates the condition is not life threatening, and "essential" is a medical term meaning "of unknown cause"." 

Yes Grandma Wears Funky Glasses ... not to be cool or to be told they look like Elton John's but because Grandma has a very rare eye condition, called Benign Essential Blepharospasm (BEB).

A few Years ago three of my young grandsons were called upon to help their grandmother pick out her new glasses at the optometrist's office. They had their job cut out for them

There were all shapes and sizes. some were big and round, some were oval, some old fashioned and some very modern. I wanted something that would reflect on me, my personality, my perspective on life. They had to be different and yet distinguished, Something that would help portray an image of who I was.

Given the opportunity, my three grandsons had their own visions of what I should be wearing. Something a little bit out of the ordinary. Something that reflected how they saw me not how I thought the world should see me.

Knowing I required a special tinted prescription for a very rare eye condition, called Benign Essential Blepharospasm (BEB), they felt something a little bit funky was in order. What they helped choose has raised a few eyebrows and questions from my generation and received complimentary comments from the younger generation.

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Kathy Clulow  Sales Representative RE/MAX All-Stars Realty Inc..  Brokerage 905.852.6143
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Brian Madigan
RE/MAX West Realty Inc., Brokerage (Toronto) - Toronto, ON
LL.B., Broker


Thanks for the heads up about this problem. I hadn't heard of it before, but I've ceratinly seem nmany people with "tinted glasses" for medical reasons.

Good luck with the cause!


May 16, 2011 05:08 AM #1
Kathy Clulow
RE/MAX All-Stars Realty Inc. Brokerage - Uxbridge, ON
Trusted For Experience - Respected For Results

Brian - there are many out there being treaed for dry eye syndrome when in fact they may suffer from Blepharospasm.

May 16, 2011 06:14 AM #2
Michael J. O'Connor
Diamond Ridge Realty - Corona, CA
Eastvale - 951-847-4883

I don't think that I ever heard of this before.  Thanks for spreading the news and I hope that your case is just minor!

p.s.  They DO make you look a little bit like Elton John!  :-)

May 22, 2011 05:35 PM #3
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Kathy Clulow

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